Autism

A bump in the road on tuesday with our lad, Refused to go to,school, brought back memories of two years ago when he was out for four months,
Said he was tired, We are blue in the face from trying to get him off technology at night, Have plugged out the wifi box and he goes beserk, Not
all kids react in a calm measured fashion, We managed to get throught to him tuesday night and he switched of 9pm and got a decent sleep,
He was up and out the door yesterday and this morning fine and early, Fingers crossed it continues in that manner,
Technology affects so many families now, A friend of mine got up to go to the toilet recently at 2am, Saw a light from his 15 year old daughters
room Looked in and she was on her phone,
Grand nephew will not go to bed without his iPad,like a teddy bear to him,
He's on extra and new med from today,
ADHD stuff etc etc
They paid I think e1200 + recently for an on-line assessment with a therapist who was able to change his other meds
Huge improvement,
But each time they talk to thus wan it's costing e150 for her to write a prescription etc

God help the parents who simply can't find the bobs,
Government is a bad joke
 
@jimmym has he tried melatonin to calm him at bedtime in order to achieve some decent rest(for all involved ) what are others thoughts on this also?
Hi he was on melatonin and it certainly made him tired and relaxed at night, about six months ago he stopped taken it and we didnt want to force
the issue, But we decided to give him a tablet this tuesday night and it helped, same again last night, so we will continue,
 
We use melatonin with our daughter and it works for her to get to sleep but she still has restless nights
Our connection has been on that
it's hit n miss mostly
He's on some other meds aswell and they help him relax but won't send him off to sleep,
Darraghs up in the school in Mayfield,
Came on leaps n bounds ref words / behaviour
Actually sat down for 15 minutes the other day in class,a first.
Poor bastard busted his gum,lips,and pulled his own tooth out.- Friday
But owning to this bloody shambles of a banana partial republic,
Couldn't be seen until Monday morn???
Yet his mans cuz runs an A and E ward in London and told her he'd be seen immediately over there,
Jab in the thigh
Job done easy,
He was so wound up by Monday he scratched the dentist and boxed the nurse,
But in fairness they were used to it and weren't fased,
Good ppl
I take my hat off repeatedly to all who care for children on the spectrum,
As for the parents I honestly don't know how ye do it
24/ 7
7 days and nights a week
365 days a year,
It's beyond love,
Thus may sound crap what I'm going to say next-
After a serious meltdown ( I mean really heavy)
Told him mam id have fecked over the balcony or else I'd be over it ???
Ye're great ppl,
And our bloody nauseas government are a thundering disgrace!
 
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Richard Hogan: Strategies to help your neurodivergent child go back to school​

ASD children, in my experience, may be very good at hiding the distress that the school environment is causing them.

In last week’s article, I explored the reasons why some students struggle to attend school.

This week, I am going to focus on the strategies parents can employ to help their autistic child or neurodiverse child back into school after a period of avoidance.

The first thing to acknowledge is that “ESBA” (emotionally based school avoidance) among ASD or neurodivergent children is not very well studied.

There are a few academic papers that I will reference and draw on here to give you further information.
ASD children, in my experience, may be very good at hiding the distress that the school environment is causing them.
They hold themselves for the school, it is only when they come out and meet their parents that the frustration and despair becomes apparent.

It is an exhausting experience for them to manage their emotions so tightly, so when they are safe with their parent the valve gets released and their feelings of overwhelm are let out.
Parents can often be very confused by this behaviour, but you are their safe space.
ASD children can display distress in ways not easily interpreted — hitting out (dysregulation) or self-stimulatory behaviour. One study in Asia found that ASD children start school-refusing earlier than neurotypical children.
There are two main reasons why an ASD child might start to develop a difficulty with going into school:

Negative reinforcement: The school environment can be very difficult for an autistic child to manage. Sensory issues, peer relations, lunch times, isolation etc, can all negatively reinforce school as a place to avoid.

Positive reinforcement: This speaks to the desire to stay in an environment that is viewed as easier or more comfortable. It’s rooted in the fear of leaving home or being separated from a parent.

Figuring out your child’s stressors is the first step in understanding the cause of this behaviour. Parents I speak with often display a variety of emotions when talking about their child’s difficulty with school.
They feel powerless as a parent, their parental authority is shattered, their own confidence as parents can really be impacted by this experience.

A sort of paradox can develop as the behaviour which caused parents to allow the child to avoid school gets utilised louder when any talk of going back into school is mentioned.
What parents can do:

  • Keep the child within a school routine.
Getting up, doing school work etc, is an important part of getting your child’s confidence back.
They will eventually have to go into adult life, and avoidance is not a strategy that will allow them to thrive as an adult.
I know this might sound hard, but remember: The absence of distress or anxiety is concretising the child’s utility of avoidance.

  • Restrict technology during school time, so that they do not get lost in the immersive world of gaming while everyone else is in school.
This is not about punishing your child, but about keeping them in a routine. They can have the games after school is finished.

  • Speak with the school. Identify triggering factors. For example, I remember working with this wonderful student who had started to avoid school.
I called out to his house and had a chat with him, and he told me it was lunch-time that he hated.
He described sitting on his own, uncomfortable as the rest of the lads chatted and joked.
I asked him what was his favourite hobby and he told me chess.

Later that evening I spoke with the principal and we set up a room for students to play board games during lunch or to sit and eat. It brought the student back into school.

So, talking with the school and figuring out how to reduce particular stressors could really help your child. Like walking in the corridors when it is really noisy could be something that upsets a child.
By tweaking their movement so they are not in the middle of that chaos might help.

  • Remember things should be done gradually. Too much exposure would dysregulate an ASD child.
Very gently is the way to work with your child. Listen to them and give them clear advice about the routine they are going back into.

  • Role playing can be helpful, or driving down to the school on a Saturday when there is no one around.
Remember what I said last week: Anxiety is the fear of the unknown, help to make it more knowable.

  • Ask the school for a room to be used if they become overwhelmed.
I have seen how this works, I have often walked past and a student is in the nice room, just taking 10 minutes to process their feelings.

  • Have compassion for you and your family. This is an issue facing many families with ASD children.
The school experience can really be a one-shoe-fits all, and of course we are all so different it can be a distressing experience for children.
We need a more inclusive school environment, we are getting there but still have a long way to go — acknowledge that, and don’t beat yourself up about what is happening.

They will find their way in life, we all did!

 

Richard Hogan: Strategies to help your neurodivergent child go back to school​

ASD children, in my experience, may be very good at hiding the distress that the school environment is causing them.

In last week’s article, I explored the reasons why some students struggle to attend school.

This week, I am going to focus on the strategies parents can employ to help their autistic child or neurodiverse child back into school after a period of avoidance.

The first thing to acknowledge is that “ESBA” (emotionally based school avoidance) among ASD or neurodivergent children is not very well studied.

There are a few academic papers that I will reference and draw on here to give you further information.
ASD children, in my experience, may be very good at hiding the distress that the school environment is causing them.
They hold themselves for the school, it is only when they come out and meet their parents that the frustration and despair becomes apparent.

It is an exhausting experience for them to manage their emotions so tightly, so when they are safe with their parent the valve gets released and their feelings of overwhelm are let out.
Parents can often be very confused by this behaviour, but you are their safe space.
ASD children can display distress in ways not easily interpreted — hitting out (dysregulation) or self-stimulatory behaviour. One study in Asia found that ASD children start school-refusing earlier than neurotypical children.
There are two main reasons why an ASD child might start to develop a difficulty with going into school:

Negative reinforcement: The school environment can be very difficult for an autistic child to manage. Sensory issues, peer relations, lunch times, isolation etc, can all negatively reinforce school as a place to avoid.

Positive reinforcement: This speaks to the desire to stay in an environment that is viewed as easier or more comfortable. It’s rooted in the fear of leaving home or being separated from a parent.

Figuring out your child’s stressors is the first step in understanding the cause of this behaviour. Parents I speak with often display a variety of emotions when talking about their child’s difficulty with school.
They feel powerless as a parent, their parental authority is shattered, their own confidence as parents can really be impacted by this experience.

A sort of paradox can develop as the behaviour which caused parents to allow the child to avoid school gets utilised louder when any talk of going back into school is mentioned.
What parents can do:

  • Keep the child within a school routine.
Getting up, doing school work etc, is an important part of getting your child’s confidence back.
They will eventually have to go into adult life, and avoidance is not a strategy that will allow them to thrive as an adult.
I know this might sound hard, but remember: The absence of distress or anxiety is concretising the child’s utility of avoidance.

  • Restrict technology during school time, so that they do not get lost in the immersive world of gaming while everyone else is in school.
This is not about punishing your child, but about keeping them in a routine. They can have the games after school is finished.

  • Speak with the school. Identify triggering factors. For example, I remember working with this wonderful student who had started to avoid school.
I called out to his house and had a chat with him, and he told me it was lunch-time that he hated.
He described sitting on his own, uncomfortable as the rest of the lads chatted and joked.
I asked him what was his favourite hobby and he told me chess.

Later that evening I spoke with the principal and we set up a room for students to play board games during lunch or to sit and eat. It brought the student back into school.

So, talking with the school and figuring out how to reduce particular stressors could really help your child. Like walking in the corridors when it is really noisy could be something that upsets a child.
By tweaking their movement so they are not in the middle of that chaos might help.

  • Remember things should be done gradually. Too much exposure would dysregulate an ASD child.
Very gently is the way to work with your child. Listen to them and give them clear advice about the routine they are going back into.

  • Role playing can be helpful, or driving down to the school on a Saturday when there is no one around.
Remember what I said last week: Anxiety is the fear of the unknown, help to make it more knowable.

  • Ask the school for a room to be used if they become overwhelmed.
I have seen how this works, I have often walked past and a student is in the nice room, just taking 10 minutes to process their feelings.

  • Have compassion for you and your family. This is an issue facing many families with ASD children.
The school experience can really be a one-shoe-fits all, and of course we are all so different it can be a distressing experience for children.
We need a more inclusive school environment, we are getting there but still have a long way to go — acknowledge that, and don’t beat yourself up about what is happening.

They will find their way in life, we all did!

Many parents speak to schools about the difficulties their asd children are having. For a day or two it's catered for but then lapses back into the norm again.
No two asd children will be carbon copies of each other, managing different difficulties must be a challenge for all involved. Some parents may prefer to home school their asd child if capable and I can see the benefits of that option.
Nobody understands the individual child better than the parent.
 
Many parents speak to schools about the difficulties their asd children are having. For a day or two it's catered for but then lapses back into the norm again.
No two asd children will be carbon copies of each other, managing different difficulties must be a challenge for all involved. Some parents may prefer to home school their asd child if capable and I can see the benefits of that option.
Nobody understands the individual child better than the parent.
To your point it can be very difficult but parents of kids with autism know it's all about prep. Example - put son's timetable into Google calendar synched with his smartwatch. Told him next class, what classroom and what teacher so he could get familiar with the school and classrooms etc.

The issue in relation to mainstream schooling is that there are so few places in ASD units and even fewer dedicated ASD schools but that goes back to each child being unique in terms of challenge and capabilities.

As I always say it's important that the kids are treated as seeing the world differently and not less. In some cases they see the world in a much more rich and deep way than some neurotypicals.
 
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