Gofundme for Coady family in Cork

[Hallbopping]

Taoiseach tells Cork dad who lost one son that discussions on life-changing drug for his other son will be brought forward

'Emotional' Micheál Martin told Craig Coady he would 'do everything I can to get the Skyclarys drug to your son and to 200 other patients'

www.irishexaminer.com

Not to make him the story but I’ve long admired how Micheál is able to deal with these situations given his own personal experiences.

That said, families shouldn’t have to beg like this for access to vital medical care.

 

[Bennyton]

Taoiseach tells Cork dad who lost one son that discussions on life-changing drug for his other son will be brought forward

'Emotional' Micheál Martin told Craig Coady he would 'do everything I can to get the Skyclarys drug to your son and to 200 other patients'

www.irishexaminer.com

Great news, I hope it's approved.

 

[Bennyton]

Not to make him the story but I’ve long admired how Micheál is able to deal with these situations given his own personal experiences.

That said, families shouldn’t have to beg like this for access to vital medical care.

It's like this everywhere, it's not available on the NHS either.

We should see generics come in from 2034, the 300k price tag is just greed from the manufacturer.

Hopefully AI kills this racket, look at the medicine progress we've made since AI came out, we've moved forward decades since January.

Here's the protection type + expiration

• New Chemical Entity (NCE) exclusivity: 28 Feb 2028
• Orphan Drug exclusivity (Friedreich's ataxia): 28 Feb 2030
• Main listed composition/product patents: 24 Apr 2033