Autism

[jimmym]

Nobody is actually properly trained or equipped to deal with it effectively

Exactly, about 6 months ago we had the guards again, one of them was very upset at the situation, He had a grasp of things, He said they make these calls regularly,

 

[omar]

Exactly, about 6 months ago we had the guards again, one of them was very upset at the situation, He had a grasp of things, He said they make these calls regularly,

My heart goes out to ye all Jimmy. Keep the head up bud!

 

[knockfiarna]

Nobody is actually properly trained or equipped to deal with it effectively

Reading through the thread it would break your heart really. Everybody wants right by their kids but sometimes you need outside help, its an indictment of services in this country that this help is not available . As you say its down to resourcing and training. A cry for help from a parent on behalf of themselves and their child shouldn't be met with a peacemeal approach. Where possible continuity of care via same personnel would help id say as they woukd have some background knowledge and understanding of family dynamic and what has been previously done. Don't be fobbed off and keep fighting for the correct approach to care for your young fella @jimmy , hopefully things get better for ye and him

 

[Clairecarebear]

Autism is the red headed stepchild of disabilities, to quote someone who works in the field.

There was supposed to be a continuity of service support model whereby people weren't passed from one service to the next when they reach18 etc.

All based on Assessments of Needs, which are just not happening. Once the legally obliged assessment is done, there is no process in place to ensure a plan is in place to deal with said needs.

 

[Chara021]

Autism is the red headed stepchild of disabilities, to quote someone who works in the field.

There was supposed to be a continuity of service support model whereby people weren't passed from one service to the next when they reach18 etc.

All based on Assessments of Needs, which are just not happening. Once the legally obliged assessment is done, there is no process in place to ensure a plan is in place to deal with said needs.

Not a very nice quote.

Anyway sorry......carry on

 

[BoggyRoad]

Reminded me of this clip. If Google was a guy. 45 seconds in.

 

[Secondfloor]

Jimmy I very rarely post on the site and havent read through all the posts. I know you are split on medication. However I will say that our experience with medication has been fantastic. Our son is younger than yours and has been on medication for a good while for ADHD (Also Autistic). Our experience is that our son is the same but calmer and can deal with daily stress much better. Big meltdowns are rare now. I know parents can be very hesitant about medication and some medications may not work or have significant side effects however you would take medication for any physical ailments, even if for life. You can always take him off the medication. The right medication can change his life and by extension the whole family.

 

[jimmym]

Jimmy I very rarely post on the site and havent read through all the posts. I know you are split on medication. However I will say that our experience with medication has been fantastic. Our son is younger than yours and has been on medication for a good while for ADHD (Also Autistic). Our experience is that our son is the same but calmer and can deal with daily stress much better. Big meltdowns are rare now. I know parents can be very hesitant about medication and some medications may not work or have significant side effects however you would take medication for any physical ailments, even if for life. You can always take him off the medication. The right medication can change his life and by extension the whole family.

Thank you so much, People have said to me medication has indeed been a gamechanger, My fear is hw might become totally dependent on medication
for the rest of his life, On the other hand if we do nothing things will probably get worse, Happy to hear things are a lot calmer at home for ye,

 

[HRN]

Thank you so much, People have said to me medication has indeed been a gamechanger, My fear is hw might become totally dependent on medication
for the rest of his life, On the other hand if we do nothing things will probably get worse, Happy to hear things are a lot calmer at home for ye,

Look, without sounding blasé here, ADHD meds and such are for life. They regulate chemical imbalances where there is no cure. You're not "dependent" any more than someone with insulin/warfarin/asthma inhaler and such are. They become just part of the daily routine and stop the noise, allowing the person manage stressors more easily

 

[HRN]

Reading through the thread it would break your heart really. Everybody wants right by their kids but sometimes you need outside help, its an indictment of services in this country that this help is not available . As you say its down to resourcing and training. A cry for help from a parent on behalf of themselves and their child shouldn't be met with a peacemeal approach. Where possible continuity of care via same personnel would help id say as they woukd have some background knowledge and understanding of family dynamic and what has been previously done. Don't be fobbed off and keep fighting for the correct approach to care for your young fella @jimmy , hopefully things get better for ye and him

It's to do with staffing because the pay is shite for the work forced on most of the workers there, from social workers to medics. It's easier and more (financially) rewarding in other adjacent fields. The people who will brave the low, relative, pay and bad conditions are overloaded, make mistakes, and burn out